National Fibromyalgia Association
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| Founded | 1997 |
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| Founder | Lynne Matallana Karen Lee Richards |
| Type | 501(c)3 |
| Focus | Patient education Medical education programs Supporting research |
| Location | |
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Area served
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International |
| Product | Education |
| Method | Assistance to support groups Fibromyalgia AWARE Magazine Fibromyalgia Awareness Day Leaders Against Pain Coalition Legislative lobbying Ongoing media presence |
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Key people
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Founder: Lynne Matallana Executive Director: Yolanda Castillo Board of directors: Nancy Derby Mark Dobrilovic John Fry, PhD Richard Matallana Michael Seffinger, DO, FAAFP Herb Smith N. Charle Morcos, MD, PhD L. Scott Stoney, MD |
| Slogan | To help empower patients |
| Mission | To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. |
| Website | www.FMAware.org |
National Fibromyalgia Association (NFA) is a nonprofit organization based in Newport Beach, CA (USA) founded to support persons with fibromyalgia (FM) and other chronic pain illnesses.
The National Fibromyalgia Association's mission is to help people affected by FM by organizing awareness events, media coverage, support and training for support group leaders across the United States. The NFA produces informational materials, hosts patient and health care provider web sites, and publishes the magazine Fibromyalgia AWARE.
First known as the National Fibromyalgia Awareness Campaign, the NFA was founded as a 501(c)3 nonprofit organization in 1997 in Orange, California, by Lynne Matallana and Karen Lee Richards. The organization developed an educational website FMaware.org In 2002, the organization also began publishing a magazine quarterly titled Fibromyalgia AWARE, which at the time was the only consumer magazine that was focused on fibromyalgia patient community issues.
Through 2006, the NFA hosted six international conferences, featuring authorities on fibromyalgia who presented their research and expertise to attendees, including patients and health care professionals. More than 1,000 people attended the 2006 FAME (Fibromyalgia Awareness Means Everything) conference.
The NFA partnered with Johns Hopkins School of Medicine and the Institute of Johns Hopkins Nursing in 2007, to form “The Fibromyalgia Circle of Care”, a collaboration that hold three annual initiatives that work to assist healthcare providers in diagnosing fibromyalgia, raising awareness of the condition, and taking care of patients diagnosed with the illness.
The NFA has been covered by various media sources, including National Public Radio,Newsweek,The Gazette, and United Press International.
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